This article is very good: http://www.prohealth.com/library/showarticle.cfm?libid=8441
It also describes exactly what I'm experiencing.
I was infected on 9/11/2010.
I was diagnosed in mid October.
I was given a four week course of doxycyline, 100mg, 2x day.
My symptoms worsened for a few days,
Then the rash went away.
The minor joint pains went away.
The random facial tightening went away.
(It was never palsy, just minor and random,
And I kept thinking I was imagining it.)
The headaches went away.
The fatigue/exhaustion got better,
But it never went away.
My treatment ended in mid November.
Starting in mid January,
Just two months later,
The headaches came back.
The fatigue/exhaustion got worse,
More or less to the point it was before.
My facial muscles randomly tighten again,
But I have still never suffered palsy,
And I keep thinking I'm imagining it.( Relevant excerpts from the articleCollapse )
Seriously, this disease is absurd.
Did you know that taking the Lyme vaccine,
When you've had Lyme in the past,
Causes the disease to reactivate?
There are also over a hundred documented symptoms,
None of which are guaranteed to be present.
Also, she said the tests in December came back negative,
But the patient web gateway has my results as positive for that test.
I was assuming she was looking at different information,
But I wonder if she wasn't.
Yay for working with temp doctors while yours is away =\
Anyway, time to bug my doctor for new treatment.
It was only the initial test that came back positive,
Which might mean nothing since it is often false,
But I still never recovered from the symptoms.
I want a three month course of tetracycline.
The best part?
It looks like tetracycline doesn't interact with NuVigil,
Whereas doxycycline did.
By the way, for your amusement -
My doxycycline instructions were:
"Take twice a day twelve hours apart,
Do not lie down for at least an hour after taking a dose.
Take with a meal, but not three hours before or after eating dairy,
Do not take within two hours of taking your narcolepsy meds
(which must be taken in the morning with a meal),
And do not take within two hours of taking Prilosec
(which also should be taken with a meal,
and also can't be taken within two hours of the narcolepsy meds)."
Those were the best directions ever
Why can't I be bit by the awesome ticks,
The ones that give radioactive powers,
And a propensity for shouting about spoons?